The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is a network of more than 20 children’s hospitals
that conduct clinical trials of new therapies for children with brain tumors with the mission to identify personalized treatment challenges.
PNOC was formed to provide children with brain tumors access to individual and personalized treatment based on the molecular biology and genetics of each tumor.
Participating hospitals include:
PNOC is running clinical trials like nanoliposomal irinotecan and immunotherapy vaccine (H3.3K27M) for Diffuse Intrinsic Pontine Glioma, modified measles virus for recurrent medulloblastoma, Everolimus for recurrent or progressive low-grade gliomas, Vemurafenib for children with recurrent/ refractory BRAFV600E-mutant gliomas.
To find out if your child is eligible to enroll in a PNOC clinical trial you have to contact the closest participating site.
Sometimes as parents we have a difficult time in finding the right words to explain our children about the therapies they are getting
and we wonder if there is a simple or interactive way to explain them.
So here is Jake, an animated eight years old boy created
by The Brain Tumour Charity that can help you explain your child about treatments used
in the management of brain cancer like neurosurgery, scans, chemotherapy, radiotherapy, and steroids.
Raining in my heart is a documentary released the last November of 2017 by real stories,
of three children who enrolled in cancer research clinical trials in Britain.
With all the conventional treatment exhausted, these kids are offered to try immunotherapy.
Sophie Ryan-Palmar (12 years old), whose cancer came back four times,
Fabian Bates (11 years old) diagnosed with Leukemia and
Chloe (3 years old) who’s Neuroblastoma has spread throughout her body.
This documentary follows these children and their families for 2 years,
giving them space to talk about their feelings and emotions as well as the decision-making process during this battle.
This documentary honors these heroic children who are helping discover new cancer treatments
and helps by raising awareness on this subject and offering hope to other cancer patients.
You can watch the full documentary here:
Chloe’s parents created a diary and they are sharing a lot of their battle on her Facebook page, to read more about her story click here.
Part of an integrative oncological treatment is to take care of all aspect of our children; music is a powerful expression tool that reduces anxiety, depression, and pain, it can also help the children to cope better with hospitalizations.
In Music therapy, the intention is to promote health by using music experiences including instrument play, movement, singing, etc.
In this video Ryan Judd from The Rhythm Tree shares with us, an interview with Catherine,
mother of Zoe who was diagnosed with a brain tumor and after the surgery music therapy helped her a lot to work out with her emotions.
For Ryan, Music therapy is honoring the child spirit and improving the quality of life.
Consider complementary methods in this road since it can bring a lot of benefits in the quality of life of a child.