|Know everything you can about your child’s disease|
As parents we may never know as much as the doctors, but we must know enough to ask the right questions and understand the answers, in order to negotiate the best treatment for our child.
You, the parent, are the most passionate in this world about your child’s life.
It is YOUR responsibility to make sure all options are considered and that doctors look into
and discuss with you options that are out of their normal course of action.
If you can not learn about your child’s disease (time, language etc.) ask a family member
or a friend to do it for you and preferably have him/her attend the meetings with the doctors.